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ACC & Me, Lena Aisami

  • lenaaisami
  • Jan 6, 2024
  • 1 min read

Updated: Jan 16, 2024

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I am a 26 year old young woman with CACC (Complete Agensis of the Corpus Callosum). At the age of 8 I was getting bad migraines. My mother took me for an MRI of my brain, and that's how we found out about my disability. All though even though I function like a normal adult I don't like to call it a "disability " ; I like to call it a "different ability."

In the face of uncertainty about my condition, my mother’s medical background provided a glimmer of understanding, yet the rest of the family was enveloped in confusion and fear about what lay ahead for me. This shared bewilderment became a pivotal point in our journey, uniting us in facing the unknown together.

 
 
 

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